Back in march of this year I got the news that any parent of a teenage girl dreads hearing. My 17 year old all star softball player is pregnant. I immediately started thinking about all the opportunities that were about to pass her by. Her and the father have known eachother since they were litttle and always said one day they would get married and have children. But I was concerned of their rocky relationship prior to this and they had just gotten back together not long before the news of her pregnancy. I still had to tell my husband the news and was worried of his reaction. Needless to say he didnt take it well at first. We all cried. As the weeks went on my husband began buying baby items , a sure sign that he had greatly warmed to the idea of our first grandchilds pending arrival. I too joined the shopping sprees and made an unspoken promise that I would buy the baby something each payday. As time went on and my daughter Erin arrived at 12 weeks she started to become very ill, not able to keep any food or liquids down, she was hospitalized four times for critically low potassium and hyperemesis. She was ordered a regimen of zofran, iron and potassium and was feeling much better. Shortly after an ultrasound revealed she was carrying a little boy. We were delighted, her and her fiance chose the name Jayden Scott for this little one. The shopping sprees resumed in full force as I was buying every winnie the pooh outfit I could find as well as baby gear and we had the best time me and both of my daughters creating a baby registry at target. On Sept. 2 Erin had an appt. at her obs office with a routine ultrasound scheduled. At this ultrasound they detected Jaydens atrial heart rate to be 142 but his ventricular rate at only 72. They referred her to a perinatologist here in Winchester that could perform a fetal echo. As a nurse myself, I knew this is done as a precaution sometimes and truly believed everything would be just fine. I went to work and gave my husband the task of going to the dr with her and her fiance Aaron. The phone call I received at work was like someone had dropped a ton of bricks on me. Jayden was in complete heart block and they were sending my daughter to university of virginia medical center for care. I left work and traveled the almost three hours there to meet with the cardiology team. It was here that they told us that Jayden is at risk of dying everyday. His av node has been damaged more than likely by Erins own collagen vascular disease, something else we never knew she had. They.bbtested Erin for the antibodies found in lupus, we found out the following week that Erin does carry those antibodies. They immediately started Erin on dexamethasone to help stop the antibodies from attacking jaydens heart. For the past three weeks his ventricular heart rate has been maintained in the mid 50s. Hes very active and is growing in the 75th percentile. But again, he is at risk everyday. The goal is to keep him in there as long as possible and get him as big as possible so that he can be implanted with an internal pacemaker upon birth. I have gone from praying to begging god everyday for jayden to stay strong and bless us with him. I have big plans for him. Since all of this, my daughter and her childhood sweetheart married in a lovely garden gazebo on mine and my husbands anniversary . They have made prayer time part of their bedtime ritual and my daughter has shown more strength and faith than most people I know.
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