need your input

If you are the parent of a child with a CHD, surely you have had quite an education since you first heard the diagnosis.
What I want to know is what YOU would say to parents who are just getting the news?
-Which book would you recommend
-Which websites
-Which experiences made you see things in an other perspective?
-Any tips
etc.
I am sure you can add things to this list

Those of us who have been through it all have invaluable knowledge to share with parents who are new to the world of CHD. I am also making an appeal to all CHD adults because a lot of parents want to know a bit more what the future will hold for their child. Every child is different ofcourse, but it will be good to have some idea how adults are living with their CHD. Hope gives strength!

So I am looking for your experiences and recommendations to put into a booklet for parents,, which will be free to download on CHD-NI when it is finished
You can email me at alexandra@chd-ni.co.uk

Thanks for your help!

Alex
xxx

www.chd-ni.co.uk






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