Congenital Heart Defect Network - Designer Heart

Back to McMaster Hospital Tomorrow

Well, we go to McMaster tomorrow for another ultrasound and visit with the high risk doctor. I didn't write anything after last week's appointment as nothing much had changed. They did not do any measurements of the baby so we could not really check on the growth of the baby. They only do measurements every two weeks so hopefully tomorrow's ultrasound will provide more information and hopefully Nathan is continuing to grow.

I have found it really helpful to read other members' blogs. Although it's terrible that so many people are affected by CHD, it is comforting that we are not alone and there are people out there who understand what we are going through.

I am very concerned about how this will affect our daughter Maddison. She is so excited to have a baby brother. I have tried to explain that he will be sick when he is born and will be spending time in the hospital but she is not quite 3 and doesn't understand. I also read on the Lobo's blog that children are not allowed in the NICU at the hospital. This has me worried since I figured Maddison and I would be staying in Toronto a lot while the baby is at Sick Kids but if I can't bring her there with me I don't know what we will do. This will all be scary and confusing to her so I don't want her to feel abandoned by me on top of everything else. It will also be difficult because Mike will have to keep on working through all this. (Besides a few days off here and there.) Well, enough of this. I was just venting some of the things that I'm always worrying about.

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Comment by The Lobos on April 29, 2009 at 6:52pm: Hey Cheryl,

I don't think you should worry about your daughter visting Sick Kids. I don't have any immediate children of my own, so allowing kids to NICU will be based on the relation to the child. In your case, when you ask your doc, I'm sure they will not have problem with it.

I keep thinking about Gavin having to work through all this as well. He just started his new job in March, so getting time off is a struggle. Will your parents be with you? I know i keep worrying about having someone with me when Gav's not around. Let me know when you find out the name of the nurse you will be dealing with at Sick Kids.

Comment by Tina Ashcraft on April 28, 2009 at 10:34pm: Thank you so much for your prayers!

I too am concerned about my other children feeling abandoned. My children are 13, 10, 8, almost 3 and 18 months. The nursery teacher from our church will be caring for the younger two children and we are hoping that a friend from IL will care for the middle two. Our oldest will either stay at the hospital with me or hang out with members of our church. My husband, Jeff, will also only be able to take off for a few days and have to return to work. It is all so overwhelming to think about!

I've been trying like crazy to prepare us for what's ahead but I still don't feel prepared.

You are in my prayers!

~Tina