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The Lobos's Discussions
Feeding Babies with Congenital Heart Defects
Started this discussion. Last reply by The Lobos May 3, 2009. 4 Replies 0 Likes
Prayer for an unborn child
Started this discussion. Last reply by The Lobos Mar 26, 2009. 1 Reply 0 Likes
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Sanctus Real - The Story Behind The Redeemer
Music video by Sanctus Real performing The Story Behind The Redeemer. (P) (C) 2011 Sparrow Records. All rights reserved. Unauthorized reproduction is a viola...
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Profile Information
- Name of loved one
- Amayah Hope Lobo
- Name of congenital heart defect
- Hypoplastic Left Heart Syndrome (HLHS)
- The age of your child or loved one with a CHD
- Born June 8th, 2009
- Birth date for your child or loved one with a CHD (MM/DD/YY)
- 06/08/2009
The Lobos's Blog
How to manage and care for a G Tube site
Posted on October 16, 2010 at 12:04pm 1 Comment 0 Likes
We thought it would be nice to share our care process for keeping Amayah's g tube site clean and trouble free. We can't guarantee that our solution will work for you but it's worth a try if you are looking for g tube care solutions.
Amayah has had a g tube since she was about 6 months old (can't remember the exit date!). Heart babies tend to struggle with feeding and in retrospect this was a much better solution than the ng tube. Well we say better in bit of a selfish way I think (for… Continue
Amayah has had a g tube since she was about 6 months old (can't remember the exit date!). Heart babies tend to struggle with feeding and in retrospect this was a much better solution than the ng tube. Well we say better in bit of a selfish way I think (for… Continue
Been away for a bit!
Posted on October 14, 2009 at 5:24pm 0 Comments 0 Likes
It's been trying over the last few months to say the least. Amayah went through a risky BAS procedure and then got her G Tube put in. Soon after she started vomiting up yellow bile and after a 6 hour stay at Sick Kids emergency we found out that the tube was blocking the passage way between her stomach and intestine. They had to re-position the tube 9 days after it was put in and they did it with any sedatives so our baby was not very pleased. On a positive note she is putting on a nice bit of… Continue
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Hi Nel, Gavin and Amayah!
How have you all been? I've been thinking about you and wondering how you are all doing. I just wanted to let you know that we are doing well. We are expecting our 3rd child (a girl) any day now (due date Apr 10). Everything is going good with this pregancy. We were followed at Mount Sinai and Sick Kids until it was determined that everything is fine.
How is Amayah doing? Well I hope. Anyway, I just wanted to let you know that I've been thinking about you and I hope all is well.
Take care and ttys.
Cheryl
Thanks for the welcome. I have a 6month old who was diagnosed with an ASD today. I also had one which was closed via catheter two years ago. I am learning that CHD impacts feeding and he has been slow to gain weight and is now in the 10th% for weight (down from 50th at birth). He also doesn't feed well. Any suggestions would be helpful. He just started solids. thank you, Meredith
God bless!
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