The Lobos's Discussions
Feeding Babies with Congenital Heart Defects
Started this discussion. Last reply by The Lobos May 3, 2009. 4 Replies 0 Likes
Prayer for an unborn child
Started this discussion. Last reply by The Lobos Mar 25, 2009. 1 Reply 0 Likes
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Designerhrt Twitter Feed
DesignerHrt: http://t.co/uCDzqJz6 continues to serve the Congenital Heart Defect community in North America and the world...
DesignerHrt: http://t.co/uCDzqJz6 continues to serve the Congenital Heart Defect community in North America and the world...DesignerHrt: @poetteromufs9 http://t.co/r2fpJ4Ao
DesignerHrt: @poetteromufs9 http://t.co/r2fpJ4AoDesignerHrt: @CHDJewelryMommy We are hoping to have a better idea by the end of this week ... stay tuned
DesignerHrt: @CHDJewelryMommy We are hoping to have a better idea by the end of this week ... stay tunedLatest Activity
The Lobos posted a statusThe Lobos posted a statusProfile Information
- Name of loved one
- Amayah Hope Lobo
- Name of congenital heart defect
- Hypoplastic Left Heart Syndrome (HLHS)
- The age of your child or loved one with a CHD
- Born June 8th, 2009
- Birth date for your child or loved one with a CHD (MM/DD/YY)
- 06/08/2009
The Lobos's Blog
How to manage and care for a G Tube site
Posted on October 16, 2010 at 12:04pm 1 Comment 0 Likes
Amayah has had a g tube since she was about 6 months old (can't remember the exit date!). Heart babies tend to struggle with feeding and in retrospect this was a much better solution than the ng tube. Well we say better in bit of a selfish way I think (for… Continue
Been away for a bit!
Posted on October 14, 2009 at 5:24pm 0 Comments 0 Likes
Comment Wall (28 comments)
- At 8:31pm on November 22, 2011, HLHS Mom gave The Lobos a gift…
Thank you for the message. I agree about the chd community available on facebook, I have over 400 heart friends. Wishing you all the best of luck! Maybe we'll meet one of these days at Sick Kids.
- At 9:21am on May 15, 2011, Lisa Curcio gave The Lobos a gift…
- At 8:40am on May 15, 2011, Lisa Curcio said…
- Thinking about you today and hoping Amayah is doing well.
- At 4:17pm on March 29, 2011,
Cheryl Davis-Catchpaw said… Hi Nel, Gavin and Amayah!
How have you all been? I've been thinking about you and wondering how you are all doing. I just wanted to let you know that we are doing well. We are expecting our 3rd child (a girl) any day now (due date Apr 10). Everything is going good with this pregancy. We were followed at Mount Sinai and Sick Kids until it was determined that everything is fine.
How is Amayah doing? Well I hope. Anyway, I just wanted to let you know that I've been thinking about you and I hope all is well.
Take care and ttys.
Cheryl
- At 11:37pm on December 28, 2010,
Belinda Blanco said… - Thank you!! Ur Baby has Left Heart Syndrome, My boy has the Right but he has a leaky Aortic Valve so technically he has heart disease on both sides..You have a beautiful girl!! God bless!
- At 8:00am on December 28, 2010, The Lobos said…
- Thank you to all of you who were thinking of and praying for Amayah. We are back home now and the recovery continues.
- At 7:56pm on December 06, 2010, Lisa Curcio gave The Lobos a gift…
- At 9:50pm on October 8, 2009,
Meredith said… - Hi there,
Thanks for the welcome. I have a 6month old who was diagnosed with an ASD today. I also had one which was closed via catheter two years ago. I am learning that CHD impacts feeding and he has been slow to gain weight and is now in the 10th% for weight (down from 50th at birth). He also doesn't feed well. Any suggestions would be helpful. He just started solids. thank you, Meredith
- At 11:20pm on September 24, 2009,
Jeannie Reynolds said… - Thank you for the welcome-your little one is absolutely precious. As you can see Lauren has definitely had her share of bumps in the road but these kids are amazing. She's now 5 and the last couple of years have been so much easier as she's grown and gotten stronger.
God bless!
- At 1:17am on August 28, 2009, Beatrice R R said…
- Yes, everything is ok. Thank you for asking. Tomorrow we have a preoperation consult with the surgeon. Gael had a CT Scan about a month ago. Then cardiolosits' nurse called to schedule the appt. with the surgeon. We are thinking they are probably going to schedule the surgery soon.They have not talked to us about the results of the scan they said we would talk about it at tomorrow's appt. THANK YOU. I HOPE YOU ARE DOING FINE. I HOPE AMAYA IS DOING VERY WELL. Tonight Gael (my baby) and I will pray for everything to be ok. We will have you in our prayer. Thanks for your concern.
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