kristy
kristy
  • 33, Female
  • northern cambria pa
  • United States
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  • Alexandra  Mouhsine
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  • Funkyheart
  • HLHS Mom
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kristy commented on The Lobos's blog post 'Amayah Hope Lobo Born June 8th, 2009 @ 3:00 p.m.'
congrats on the new baby.. THinking of you all. Such a strong lil girl. All my love thoughts an prayers
Jun 16, 2009
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kristy is now a member of Congenital Heart Defect Network - Designer Heart Mar 28, 2009

Profile Information

Name of loved one
Isaac pry
Name of congenital heart defect
HLHS
If you have a website or blog of your own what is it
http://www.carepages.com/carepages/isaacjoseph
The age of your child or loved one with a CHD
4

Comment Wall (2 comments)

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At 3:35pm on April 1, 2009, The LobosThe Lobos said…
Thanks Kristy, that means a lot. I can just imagine how it would feel to hear the news right after delivery. I'm thnankful in this case that we found out before delivery, so the doctors are prepared and it's not a sudden shock the day of delivery. But there's always the sinking feeling that it may not turn out the way we want it to, so i think right now it's just the anticipation what will happen on that day.

We're reading as much as we can about taking care of a child with HLHS, but i know it will never fully prepare us for the real thing. Thanks again for your support, i'm sure i'll be reaching out to you soon.

A big hug for Isaac, he's always in our prayers.
At 3:49pm on March 30, 2009, The LobosThe Lobos said…
Welcome to Designer Heart - Thank you for joining.

I'm so happy to see another child with the same condition that our baby has, it's comforting. Isaac is a trooper!!
 
 
 

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