Posted on May 15, 2009 at 3:46pm
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Well today was the day that i had my pre op - medical at the Bristol Royal Infirmary where i will also be having my operation in two weeks time.
It started of with a lot of questions asked about my previous operation and other operations that i had as a child as well as filling out a form for the anaesthetist.
This was followed by a tour of the icicu which is a brand new facility which only opened this week so that i could get an idea of what to expect, must admit that it was both a…
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Thanks for responding to my blog and I'm so happy to talk with an adult who has been diagnosed with this condition as a child.
This has all happened so fast and finding out after my 19 week ultrasound I felt a bit hopeless and overwhelmed with what to expect. Sometimes I think finding out these things so early can make it more difficult. Like you said you and your family did not know until you were four years old. It brings me great comfort to hear your story and feel that you live a very active and normal life. This is what I have been reaching out for, to hear stories from adults and moms, dads of children who have TOF.
I won't know for another month , after an echocardiogram on my daughter's heart, how closed her valve is but I heard that this can determine the severity or the need to correct and have multiple surgeries. Can I ask you what symtoms led to the discovery of you having TOF at four and how closed was your valve? Does this condition run in your family? I get very anxious when I read about all variations of this condition and I notice the pulmonary valve seems to be where the great differences happen.
I can't thank you enough for reaching out to share with me. I am so grateful. Ian I wish you all the best with your future surgery and hope you can have a supported and swift recovery.
I am trying to see the positive in all of this. I just want my little girl to be okay and live a happy , healthy life.
Thanks so much,
Leslie Jennings
The Lobos