Tami,
I definitley want to chat with you! I am the Coordinator of a support group for families with congenital heart defects and achieved my goal of becoming a medical assistant, not quite made it into peds cardiology, but I'm headed that…
Hi My name is Tami I was born with TOF ALSO in 1970 though like you I have had several corrective surgeries. first one being only 8days after my birth. Don't remember it of course, then also at 12 then again at 36 years of age. The first…
Hi Shannon - it was great meeting you over the weekend. I've been reading some articles here and they have been extremely helpful, so thanks for the insight.
DISCLAIMER:This is a blog post from my personal blog:http://anenlightenedheart.blogspot.com/2009/04/let-me-tell-you-something-about-broken.htmlIt is an emotional look at how a child's heart defect can shape the child and the family. The story may seem sad and scary and painful, but I assure you, I am a happy, well adjusted, fully functioning grown woman. The journey my family travelled was…See More
I've just favorited your shop! I love your jewelry. I too have a shop and am using some of my peices to bring awareness to CHDs.http://www.etsy.com/shop/Cowgirlatheart. I will share your site with the Mended Little Hearts group I am a member…
Sarah,
Cameron is ADORABLE! I love your picture of him. I am almost 45 years old and was born with Tetralogy.....I am still alive and kicking! I also had a shunt put in when I was still an infant and since have had open heart surgery three times.…
Hi Shannon - it was great meeting you over the weekend. I've been reading some articles here and they have been extremely helpful, so thanks for the insight.