"Leslie, your little girl is adorable and looks very similar to how I was when I was young. I was born with TOF and Pulmunary atresia. I was 6 pounds and went to 5 because I wasn't eating and they couldn't figure out why. I don't know…"
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Leslie Jennings
- 44, Female
- Toronto, ON
- Canada
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Leslie Jennings left a comment for Matthew Coscia"Hi Matthew,
Our daughter Isabela had her surgery Nov. 5th. It was a real shocker as we didn't expect it until Jan. She had a blue spell. It wasn't too serious but serious enough to move her surgery up. She was crying and her lips appeared…"
Leslie Jennings commented on Shelly's blog post New Here"Hi Shelly,
Thanks so much for sharing your story. I was wondering why you had 3 surgeries and at what age did you have them? I hear now most TOF babies will usually have 1 surgery and maybe another when their heart ourgrows their valve, in teenage…"
Leslie Jennings left a comment for ian david webster"Ian,
Thanks for responding to my blog and I'm so happy to talk with an adult who has been diagnosed with this condition as a child.
This has all happened so fast and finding out after my 19 week ultrasound I felt a bit hopeless and overwhelmed…"
ian david webster left a comment for Leslie Jennings"Hello Leslie, I'm new to this site within the last couple of days and your blog was the first one that i came across as it hit a nerve with me, the reason being that i also suffer from Tetralogy of Fallot. I have no idea when i was diagnosed…"
Profile Information
- Name of loved one
- Isabella
- Name of congenital heart defect
- tetralogy of fallot
- The age of your child or loved one with a CHD
- 21 weeks in utero
I'm new to this site and want to say thank you to the Lobo's for setting it up.
Three weeks ago we found out that our second child at 19 weeks in utero was diagnosed with Tetralogy of Fallot. I was completely devastated with the news and had to wait many days to get a full report from the pediatric cardiologist. It looks like our little girl may need surgery within the first year of her life but it's not certain when. She will need a hole closed in her heart, in the lower chamber, and possibly the pulmonary valve will need to be expanded a bit. This will be decided after she is born and as she's assessed based on ultrasounds and her health after delivery. My cardiologist has relieved me somewhat in saying the condition is very correctable and she should go on to live a normal life with normal activity levels.
We are now hopeful and happy to be living in Toronto where we have one of the best childrens' hospitals in the world . We were told they perform this surgery routinely at Sick Kids and have a very high success rate. It is one of the more common CHDs.
I would love to connect with other families who have children with TOF and am also interested in hearing stories of success from other families with different CHDs. I am reaching out as I find it really helps when you really have no idea what is ahead of you.
Thanks so much for this site and I hope to make new friends while being apart of it.
Leslie Jennings, Toronto , ON
Three weeks ago we found out that our second child at 19 weeks in utero was diagnosed with Tetralogy of Fallot. I was completely devastated with the news and had to wait many days to get a full report from the pediatric cardiologist. It looks like our little girl may need surgery within the first year of her life but it's not certain when. She will need a hole closed in her heart, in the lower chamber, and possibly the pulmonary valve will need to be expanded a bit. This will be decided after she is born and as she's assessed based on ultrasounds and her health after delivery. My cardiologist has relieved me somewhat in saying the condition is very correctable and she should go on to live a normal life with normal activity levels.
We are now hopeful and happy to be living in Toronto where we have one of the best childrens' hospitals in the world . We were told they perform this surgery routinely at Sick Kids and have a very high success rate. It is one of the more common CHDs.
I would love to connect with other families who have children with TOF and am also interested in hearing stories of success from other families with different CHDs. I am reaching out as I find it really helps when you really have no idea what is ahead of you.
Thanks so much for this site and I hope to make new friends while being apart of it.
Leslie Jennings, Toronto , ON
Comment Wall (3 comments)
- At 8:33pm on April 15, 2012,
Sarah said… Leslie, your little girl is adorable and looks very similar to how I was when I was young. I was born with TOF and Pulmunary atresia. I was 6 pounds and went to 5 because I wasn't eating and they couldn't figure out why. I don't know a lot. I know a lot more now than I did growing up. My parents never understood and would get mad when I woulnd't do chores and things like that and sleep a lot. I could never do sports and low on oxygen. I play piano and music is my life. I am 33 will be 34 and I had two open heart surgeries about 5 years ago. I wasn't born with a pulmunary artery and had a cadaver put in. I still can't do much as I tire quickly I dont need my oxygen as much though only when I get really sick I had endocarditis, and I also had gal bladder surgery and hysterectomy. I honestly don't know how or why I'm still here. I've been very lucky. I pray your daughter has the same luck she is adorable. How are things going with her?
Sarah
- At 5:59pm on March 25, 2009, ian david webster said…
- Hello Leslie, I'm new to this site within the last couple of days and your blog was the first one that i came across as it hit a nerve with me, the reason being that i also suffer from Tetralogy of Fallot. I have no idea when i was diagnosed with it, but i had open heart surgery when i was four years old. What they did with me was to use a piece of felt to widen the valve that was narrow and it has lasted me 38 years. That valve is now going to be replaced and i am also oing to have a more modern procedure of my original op done on another valve, hopefully in a few weeks time. I lead a very active life and have taken part in lots of physical activities including sports and i work in a job that requires a lot of physical work. I would be delighted to chat with you and to try and answer any questions that you may have. I hope to hear from you soon, best wishes Ian.
- At 11:32pm on March 7, 2009,
The Lobos said… - Welcome to Designer Heart - Thank you for joining. Please feel free to start blogging and/or uploading pictures to your My Page.
Thanks
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