Hello to all CHD families. Our son, Will, is doing very well, after 3 heart surgeries. Will was originally on the Fontan series route. He had BT shunt, Glenn, and then we learned because of lung function in kids with Down Syndrome, the Fontan is not a good option. Fontans in kids with DS tend to fail within 3-5 years. Therefore, we went to Boston for a Bi-ventricle repair. Boston is doing Bi-vents on many many kids with Unbalanced AV Canal, both left and right dominant. And is in early stages of the bi-vent/ventricle growth on classic HLHS/HRHS as well. If you are considering a second opinion, go to the #1, Children's Hospital of Boston. Will's surgeon is Dr. Pedro del Nido, head of CV surgery and head of Harvard Medical School CV surgery dept.
We have 5 great kids, all with 4 chambered hearts now, Will's is very designer edition, but that is fine by us! He sees his cardio every 4 months, but he is doing great. Normal sats (96% and above) and keeps up just fine with his siblings. All our children are such gifts. We Thank the Lord for His Blessings.
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