"Hi I'm Ashley Hummel and I have TOF and I'm now still answering questions that I have now as an adult with it. I look at wikapedia.com/CHD that might help you out if not go to www.wedmd.com they for sure have the info you are looking for."
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Profile Information
- Name of loved one
- Dounya
- Name of congenital heart defect
- complete AVSD
- If you have a website or blog of your own what is it
- http://www.chd-ni.co.uk
- The age of your child or loved one with a CHD
- 7 months
PLEASE SIGN THIS PETITION!!!
To raise more awarenss we need to join hands....if you raise your voice on your own it is like calling out in the dark but when we all join together our voices could turn into a thunderstorm..
please sign the petition below and help make a difference!!
http://www.gopetition.com/petitions/media-awareness-for-chd.html
please sign the petition below and help make a difference!!
http://www.gopetition.com/petitions/media-awareness-for-chd.html
Alexandra Mouhsine's Blog
need your input
Posted on May 6, 2009 at 11:30am 1 Comment 0 Likes
If you are the parent of a child with a CHD, surely you have had quite an education since you first heard the diagnosis.
What I want to know is what YOU would say to parents who are just getting the news?
-Which book would you recommend
-Which websites
-Which experiences made you see things in an other perspective?
-Any tips
etc.
I am sure you can add things to this list
Those of us who have been through it all have invaluable knowledge to share… Continue
What I want to know is what YOU would say to parents who are just getting the news?
-Which book would you recommend
-Which websites
-Which experiences made you see things in an other perspective?
-Any tips
etc.
I am sure you can add things to this list
Those of us who have been through it all have invaluable knowledge to share… Continue
CHD Awareness
Posted on April 17, 2009 at 4:57am 0 Comments 0 Likes
To raise more awarenss we need to join hands....if you raise your voice on your own it is like calling out in the dark but when we all join together our voices could turn into a thunderstorm.. The media is a crucial tool in being heard but sadly there is still not to much interest. We need to give them a wake up call and show how much it's needed!
please sign the petition below spread the word hand help make a… Continue
please sign the petition below spread the word hand help make a… Continue
Comment Wall (1 comment)
- At 3:13pm on March 30, 2009,
The Lobos said… - Hi Alexandra,
Welcome to Designer Heart - Thank you for joining. Please feel free to start blogging and/or uploading pictures to your My Page.
© 2012 Created by The Lobos.
