my life so far with CHD

My son was born on a healthy baby boy weighing 6lbs 11oz on March 27, 2009. He appeared to be a normal healthy baby boy until about 12hrs later. Isaac was having feeding issues all day, every time he would get a good latch he would dtart choking...he wasn't getting enough oxygen. About 12 hrs later  a nurse was trying to help me breastfeed and noticed him go blue around the lips. Took him from me and sent him to NICU where he was diagnosed with HLHS. Isaac was suppose to be air lifted to SickKids in T.O but it was storming so they drove him there by ambulance. He stayed in CICU in T.O for a few days so they could decide what they were going to do. It was so heart breaking seeing your newborn hooked up to all these wires just to stay alive. They decided to do an MRI. The MRI determined that although Isaac's left ventricle was small it was still functioning like it should and changed his diagnosis from HLHS to Shone's and went with the Coarctation repair. We were discharged a week from the surgery. Our follow up appointments are in London at the children's. At first it was every 4 to 6 weeks to watch his aortic valve and ventricle grow. Every thing was going well except that Isaac was beginning to develop SubAortic Stenosis that required to him to have surgery at 17mos old. His body took very well to the repair and we were home 4 days later. Isaac also has an allergy to anesthetic that we found about attempting to repair the Sub AS. The journey hasn't been easy so far but thank god I am watching my son turn into a beautiful person!!