A social network for families who have a loved one affected by a congenital heart defect. A place to share, learn and grow together.

Members

  • Kristi
  • Jayne Ng
  • Traci Lisa
  • Sarah Mckain
  • Kristin Collier
  • shawna joy rannow
  • Debby Gibson
  • Mary Brown
  • Ashley Burgess
  • Chris
  • Anna Kertesz
  • Angela Norris
  • Sue Peterson
  • Lisa Curcio
  • Stacey Lihn
  • Shannon Tucker
  • christine
  • Veron Poh
  • Lainette Pichardo
  • Dascha Cleckley

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Congenital Heart Defect News

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Latest Activity

Kristi is now a member of Congenital Heart Defect Network - Designer Heart
Welcome Them!
yesterday
Jayne Ng commented on Veron Poh's blog post 'Amniotic Test is Out'
Hey Veron, Please don't get discouraged. I have Fallot's Tetralogy and I'm fine! The defect was surgically corrected when I was young. I'm married and have two kids now.
March 5
Jayne Ng is now a member of Congenital Heart Defect Network - Designer Heart
Welcome Them!
March 5
The Lobos added 4 photos
March 4

Videos

Blog Posts

Traci Lisa

CHD Jewelry - Help Spread the Word!

Hi!



I came across this site today. I have a 2 year old daughter, Cassidy, who was born with Tetralogy of Fallot w/ PA & MAPCA’s.



I think this is a great way to get the word about about CHD’s and I commend you for what you’re doing.



My wife and I are also on a mission to spread the word about CHD’s. We just started a jewelry company called Lucky 10. All of our products are handmade and pertain t

… Continue

Posted by Traci Lisa on March 1, 2010 at 5:05pm

Sarah Mckain

Hey =)

Hey everyone =)



My Name is Sarah, and i was born with truncus arteriosus-type 2 (with the conduit and VSD), VSD, and 2 murmurs,



I have had 3 big heart operations, one of them being an aortic valve replacment, so this means i am on a anti-coagulant for the rest of my life =/ At the minute im on one called inoheparin tinzaparin or heprin for short =)



But previously i have been on warafrin and phenidione (I think thats how there spelt =P) but they hav

… Continue

Posted by Sarah Mckain on February 27, 2010 at 1:05pm

Veron Poh

Amniotic Test is Out

My amniotic test has shown that my baby is normal so at least we have passed one hurdle. It is another long wait for the next genetic scan on 6 Jan to see if there is any improvement on my baby's heart. What is most disheartening is that I did not have the support of my mum who seems to be pessimistic about the entire thing. Even my close friends and sisters are helping to pray for my baby. Let's just hope there is a sliver of chance for my baby to survive the ordeal and let me and Steve become… Continue

Posted by Veron Poh on December 16, 2009 at 10:26pm — 1 Comment

Veron Poh

What is Fallot Tetra?

My baby was diagnosed with Fallot Tetra when Steve and I went for the genetic scan on 16th week of pregnancy. The news totally shocked us for the following weeks to come. Immediately, I had to undergo amniotic test and now is the long wait for the results. We just don't know what to say to comfort each other now... next update on 10 Dec.

Posted by Veron Poh on December 3, 2009 at 4:15am

 
 

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Thank You For Your Donations

We have added a ChipIn & PayPal donate button for those of you who would like to support the Designer Heart Network. We currently run the network from Toronto, Canada and have outlined below some of the costs we incur on a monthly basis. Please understand that we are not a charity and cannot provide receipts for tax purposes. There is no obligation to donate. Your support to the families on this network, personal blogs and discussions are worth their weight in gold.

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