A social network for families who have a loved one affected by a congenital heart defect. A place to share, learn and grow together.

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HLHS Mom commented on HLHS Mom's blog post Rock Climbing at Sick Kids - 04/28/2012
"Look at how far we have come. David is rock climbing one week after his sixth birthday!"
May 18
HLHS Mom is now friends with ABC Miles and carmel
May 18
HLHS Mom posted a blog post
May 18
carmel updated their profile
May 17
Profile Iconcarmel and Myra Simpson-Phillips joined Congenital Heart Defect Network - Designer Heart
May 10
carmel liked Deborah Vehec's blog post My sweet Angel
May 6
carmel liked HLHS Mom's video
May 6
Sarah commented on The Lobos's video
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Abba is hilarious!

"she is adorable I am so happy she was able to be completely healed!"
Apr 15

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Blog Posts

My sweet Angel

Posted by Deborah Vehec on November 8, 2011 at 10:59am 2 Comments

My name is Debbie and my son, Jayden, was born on June 17, 2011 with hypoplastic left heart syndrome and ventral septal defect.  He has had one surgery about 1 month after he was born and had complications.  He began to heal and got really sick…

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Praying for my grandchild every minute of the day

Posted by Kerry Blake on October 1, 2011 at 7:45am 1 Comment

Back in march of this year I got the news that any parent of a teenage girl dreads hearing. My 17 year old all star softball player is pregnant. I immediately started thinking about all the opportunities that were about to pass her by. Her and the… Continue

Anyone (a survived baby who now a married woman with kid/s)Having a Pulmonary Atresia Hypoplastic Right (or Left) Ventricle?

Posted by ABC Miles on September 28, 2011 at 4:46pm 2 Comments

Yes, is anyone of you here who have survived when was a baby who now a married woman with kid/s, or a parent ---> having a Pulmonary Atresia Hypoplastic Right (or Left) Ventricle? Please let me know if you or are these or you know someone. Am… Continue

Forum

my life so far with CHD

Started by Stephanie Lajoie in Prayers & Prayer Requests. Last reply by Stephanie Lajoie Oct 18, 2011. 2 Replies

Inspiration - quotes/songs

Started by rainsplats in Inspiration. Last reply by Jeannie Reynolds Sep 24, 2009. 1 Reply

Feeding Babies with Congenital Heart Defects

Started by The Lobos in Parenting. Last reply by The Lobos May 3, 2009. 4 Replies

Prayer for an unborn child

Started by The Lobos in Prayers & Prayer Requests. Last reply by The Lobos Mar 25, 2009. 1 Reply

 
 
 

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