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A social network for families who have a loved one affected by a congenital heart defect. A place to share, learn and grow together.
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Tami Kellerhalls commented on Ashley Brooke Hummel's blog post 'Adults living with Tetralogy of Fallot'
Hi Ashley, I was born with TOF also. I have had 3 open heart surgeries and now have a defibrillator/pacemaker that has to be redone this summer. I have also found out that I have pulmonary artresia along with my tretralogy of fallot. I am 41 years…
Congenital Heart Defect Network - Designer Heart now has leaderboards
Sanctus Real - The Story Behind The Redeemer
Music video by Sanctus Real performing The Story Behind The Redeemer. (P) (C) 2011 Sparrow Records. All rights reserved. Unauthorized reproduction is a viola...
Video posted by The Lobos
been feeling really bad lately. hope it gets better. Its not a cold or flu its something to do with my heart.
Status posted by Tami Kellerhalls
Deborah Vehec commented on Deborah Vehec's blog post 'My sweet Angel'
Thanks, The Lobos. He seems to do so well, then it's like he takes 2 steps back. It gets discouraging sometimes. I'm trying to stay strong for him, but it's tough.
Decision time at www.DesignerHeart.com - please come by and share your thoughts.
Status posted by The Lobos
Videos
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David - HLHS
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Abba is hilarious!
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Baby Chasin
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Blog Posts
My sweet Angel
Posted by Deborah Vehec on November 8, 2011 at 10:59am 2 Comments 0 Likes
My name is Debbie and my son, Jayden, was born on June 17, 2011 with hypoplastic left heart syndrome and ventral septal defect. He has had one surgery about 1 month after he was born and had complications. He began to heal and got really sick…
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Praying for my grandchild every minute of the day
Posted by Kerry Blake on October 1, 2011 at 7:45am 1 Comment 0 Likes
Back in march of this year I got the news that any parent of a teenage girl dreads hearing. My 17 year old all star softball player is pregnant. I immediately started thinking about all the opportunities that were about to pass her by. Her and the… Continue
Anyone (a survived baby who now a married woman with kid/s)Having a Pulmonary Atresia Hypoplastic Right (or Left) Ventricle?
Posted by ABC Miles on September 28, 2011 at 4:46pm 2 Comments 0 Likes
Yes, is anyone of you here who have survived when was a baby who now a married woman with kid/s, or a parent ---> having a Pulmonary Atresia Hypoplastic Right (or Left) Ventricle? Please let me know if you or are these or you know someone. Am… Continue
Customized Heart Images of CHDs
Posted by Nanette of HeartBabyHome on April 27, 2011 at 4:00pm 1 Comment 0 Likes
Hi! I'm Nanette from HeartBabyHome.
In 2008, my youngest twin was born with a complex congenital heart defect. I couldn't find a heart image anywhere that showed all her…
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my life so far with CHD
Started by Stephanie Lajoie in Prayers & Prayer Requests. Last reply by Stephanie Lajoie Oct 19, 2011. 2 Replies 0 Likes
Managing pain and stress in babies and toddlers who go through CHD surgeries?
Started by The Lobos in Parenting Jun 3, 2011. 0 Replies 0 Likes
Inspiration - quotes/songs
Started by rainsplats in Inspiration. Last reply by Jeannie Reynolds Sep 25, 2009. 1 Reply 0 Likes
Feeding Babies with Congenital Heart Defects
Started by The Lobos in Parenting. Last reply by The Lobos May 3, 2009. 4 Replies 0 Likes
Prayer for an unborn child
Started by The Lobos in Prayers & Prayer Requests. Last reply by The Lobos Mar 26, 2009. 1 Reply 0 Likes
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