A social network for families who have a loved one affected by a congenital heart defect. A place to share, learn and grow together.

Members

  • Tracy DuBose
  • Deborah Vehec
  • Tami Kellerhalls
  • Michelle Moody
  • Stephanie Lajoie
  • Kerry Blake
  • Colleen Lachenman
  • ABC Miles
  • Patricia Gordy
  • kelly thoma
  • Austin
  • Nancy Anderson
  • Denise Kaski
  • Jared smith
  • Nanette of HeartBabyHome
  • Kerry Riley
  • angela dawn coulter
  • Kelley Gatts
  • Jessica Knigge
  • Michelle Farley
 

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Latest Activity

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Tami Kellerhalls commented on Ashley Brooke Hummel's blog post 'Adults living with Tetralogy of Fallot'
Hi Ashley, I was born with TOF also. I have had 3 open heart surgeries and now have a defibrillator/pacemaker that has to be redone this summer. I have also found out that I have pulmonary artresia along with my tretralogy of fallot. I am 41 years…
Jan 8
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Congenital Heart Defect Network - Designer Heart now has leaderboards Dec 13, 2011
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We may have a new direction for www.DesignerHeart.com - Please stay tuned!
Status posted by The Lobos Dec 10, 2011
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Sanctus Real - The Story Behind The Redeemer

Music video by Sanctus Real performing The Story Behind The Redeemer. (P) (C) 2011 Sparrow Records. All rights reserved. Unauthorized reproduction is a viola...
Video posted by The Lobos Dec 10, 2011
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been feeling really bad lately. hope it gets better. Its not a cold or flu its something to do with my heart.
Status posted by Tami Kellerhalls Nov 23, 2011
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Deborah Vehec commented on Deborah Vehec's blog post 'My sweet Angel'
Thanks, The Lobos.  He seems to do so well, then it's like he takes 2 steps back.  It gets discouraging sometimes.  I'm trying to stay strong for him, but it's tough.
Nov 23, 2011
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Decision time at www.DesignerHeart.com - please come by and share your thoughts.
Status posted by The Lobos Nov 23, 2011
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Deborah Vehec was featured Nov 23, 2011

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Blog Posts

Deborah Vehec

My sweet Angel

Posted by Deborah Vehec on November 8, 2011 at 10:59am 2 Comments

My name is Debbie and my son, Jayden, was born on June 17, 2011 with hypoplastic left heart syndrome and ventral septal defect.  He has had one surgery about 1 month after he was born and had complications.  He began to heal and got really sick…

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Kerry Blake

Praying for my grandchild every minute of the day

Posted by Kerry Blake on October 1, 2011 at 7:45am 1 Comment

Back in march of this year I got the news that any parent of a teenage girl dreads hearing. My 17 year old all star softball player is pregnant. I immediately started thinking about all the opportunities that were about to pass her by. Her and the… Continue
ABC Miles

Anyone (a survived baby who now a married woman with kid/s)Having a Pulmonary Atresia Hypoplastic Right (or Left) Ventricle?

Posted by ABC Miles on September 28, 2011 at 4:46pm 2 Comments

Yes, is anyone of you here who have survived when was a baby who now a married woman with kid/s, or a parent ---> having a Pulmonary Atresia Hypoplastic Right (or Left) Ventricle? Please let me know if you or are these or you know someone. Am… Continue
Nanette of HeartBabyHome

Customized Heart Images of CHDs

Posted by Nanette of HeartBabyHome on April 27, 2011 at 4:00pm 1 Comment

Hi!  I'm Nanette from HeartBabyHome.

    In 2008, my youngest twin was born with a complex congenital heart defect. I couldn't find a heart image anywhere that showed all her…

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Forum

Stephanie Lajoie

my life so far with CHD

Started by Stephanie Lajoie in Prayers & Prayer Requests. Last reply by Stephanie Lajoie Oct 19, 2011. 2 Replies

rainsplats

Inspiration - quotes/songs

Started by rainsplats in Inspiration. Last reply by Jeannie Reynolds Sep 25, 2009. 1 Reply

The Lobos

Feeding Babies with Congenital Heart Defects

Started by The Lobos in Parenting. Last reply by The Lobos May 3, 2009. 4 Replies

The Lobos

Prayer for an unborn child

Started by The Lobos in Prayers & Prayer Requests. Last reply by The Lobos Mar 26, 2009. 1 Reply

 
 
 

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